Tidepool Big Data Donation Project

Introducing the Tidepool Big Data Donation Project

Make an impact on diabetes research

The Tidepool Big Data Donation Project lets you securely and anonymously donate de-identified diabetes device data to researchers, device makers, and other innovators who deeply need it. Now the diabetes community will have the opportunity to make an impact in diabetes research and innovation on a scale worthy of the label “big data.”
Accelerate Research. Support Tidepool and other Diabetes Nonprofits.

How the Tidepool Big Data Donation Project works

DONATE YOUR DATA
CONTRIBUTE TO RESEARCH

Anonymously share your de-identified device data with the Tidepool Big Data Donation project. If you choose to opt-in, your data will contribute to research and innovation– and help support Tidepool and many any other diabetes nonprofits.

DATA PARTNERS
PROPEL RESEARCH

Your anonymized data– combined with data from hundreds of people with diabetes– has the opportunity to accelerate research studies for our data partners– researchers, device makers, and other innovators who deeply need it.

SUPPORT TIDEPOOL
AND DIABETES NONPROFITS

Anytime a data partner pays to access your secure, anonymized data, Tidepool will donate 10% of the proceeds to a nonprofit organization of your choice, giving back to the diabetes community, too.
Be a part of something big

Here's what you'll do to start donating your data today

You can opt into and opt out of donating your anonymized data at any time.

New to Tidepool?

  • Step 1. Create your free account.
  • Step 2. When you are configuring your account, check the option to “Donate my anonymized data”.
  • Step 3. If you would like Tidepool to send 10% of the proceeds generated by your data donation to a diabetes nonprofit organization, select one from the dropdown menu.
  • Step 4. Upload your data. We recommend setting a reminder to upload your data at least once a month.

Sign up and donate your data today

Already have a Tidepool account?

  • Step 1. Log in to Tidepool.
  • Step 2. Click “Donate my anonymized data”.
  • Step 3. If you would like Tidepool to send 10% of the proceeds generated by your data donation to a diabetes nonprofit organization, click “Choose a diabetes nonprofit”.
  • Step 4. Select which nonprofit diabetes organization(s) you’d like to benefit from your data donation and save your settings.
  • Step 5. Upload your data. We recommend setting a reminder to upload your data at least once a month.

Log in and donate your data today

Remember, you own your health data

You decide how your health data gets used

Data privacy is near and dear to our hearts and, as many of us at Tidepool are living with diabetes, we understand the importance of maintaining ownership and authority over our health data.

Once you choose to donate your data, Tidepool will anonymize it and include it in the pool of dataset that we make available to our data partners. Different data partners have different needs, and while Tidepool does not currently provide a mechanism for you to have fine-grained control over who receives the datasets, we will always be transparent about who the recipients are.

Have more questions?

For the Tidepool Big Data Donation Project, before any data is made available to researchers or device innovators, it is stripped of all identifying information, including name, email address, and device identifiers. In addition, Tidepool replaces your Tidepool user identifier (that looks like 0a1b2c3d) with a “hash” value that is generated using a cryptographically secure one-way hash function. These identifiers cannot be decrypted into their original form, even by Tidepool, but they allow researchers to correlate anonymized datasets over time from the same user.

Tidepool uses industry best practices, including end-to-end encryption to secure data. You can read detailed information all about our security infrastructure in this document.

You will not be directly identifiable based on the information you choose to donate. Donated, anonymized information will be stored separately and made available without any of your personal Tidepool account information.

Yes. The fees charged to data partners for access to your donated, anonymized datasets will help keep our software free for people with diabetes and their clinicians, as it is today. These fees are not at the expense of your data’s integrity or security, or your personal safety. In other cases, we will make datasets available at no cost. 10% of the proceeds generated from the Tidepool Big Data Donation Project will be donated to other diabetes nonprofit organizations.

Whether you’re creating a Tidepool account for the first time, or you’re an existing Tidepool user, donating your data is easy. You can follow these step-by-step instructions to get setup.

At any time after you have opted in, you can choose to opt out. After you’ve logged into your account, click on the account name at the top middle of the page to navigate to your profile settings. Remove any nonprofit diabetes organizations you’ve selected to receive 10% of proceeds generated by your data donation. Uncheck “Donate my anonymized data” and click “Save”. If you opt in, and then later change your preference to opt out, you will not be able to remove or delete data that had been previously donated.

Don’t see your question here? Check out more of our FAQs or email bigdata@tidepool.org
Our diabetes nonprofit partners

Help support the diabetes nonprofit community

By donating your data, you can also help support a diabetes organization of your choosing on their mission. Here are the first organizations we are partnering with on the Tidepool Big Data Donation Project. If you are a diabetes nonprofit organization and you would like to join the Tidepool Big Data Donation Project, .
Our Data Partners

How your data will be put to use

With your help, our goal is to provide our data partners with the best opportunity for ground-breaking research. Real-world datasets will help diabetes researchers, device makers and other innovators innovate faster, create better products, and expand the boundaries of their knowledge about diabetes.

We will always be completely transparent with you about what we do with the data you donate – and we’re excited to share how our data partners are using the data, and what they have learned through their research.