For the Tidepool Big Data Donation Project, before any data is made available to researchers or device innovators, it is stripped of all identifying information, including name, email address, and device identifiers. In addition, Tidepool replaces your Tidepool user identifier (that looks like 0a1b2c3d) with a “hash” value that is generated using a cryptographically secure one-way hash function. These identifiers cannot be decrypted into their original form, even by Tidepool, but they allow researchers to correlate anonymized datasets over time from the same user.
Tidepool uses industry best practices, including end-to-end encryption to secure data. You can read detailed information all about our security infrastructure in this document.
You will not be directly identifiable based on the information you choose to donate. Donated, anonymized information will be stored separately and made available without any of your personal Tidepool account information.
Yes. The fees charged to data partners for access to your donated, anonymized datasets will help keep our software free for people with diabetes and their clinicians, as it is today. These fees are not at the expense of your data’s integrity or security, or your personal safety. In other cases, we will make datasets available at no cost. 10% of the proceeds generated from the Tidepool Big Data Donation Project will be donated to other diabetes nonprofit organizations.
Whether you’re creating a Tidepool account for the first time, or you’re an existing Tidepool user, donating your data is easy. You can follow these step-by-step instructions to get setup.
At any time after you have opted in, you can choose to opt out. After you’ve logged into your account, click on the account name at the top middle of the page to navigate to your profile settings. Remove any nonprofit diabetes organizations you’ve selected to receive 10% of proceeds generated by your data donation. Uncheck “Donate my anonymized data” and click “Save”. If you opt in, and then later change your preference to opt out, you will not be able to remove or delete data that had been previously donated.